Ah…so…I have started my senior project and published it on youtube. I haven’t gotten many hits yet…which is to be expected because I’m new, uninteresting, and not very funny.
I did, however, receive some uhm….”interesting” feedback from this one character “hivquestions” who writes:
“Samantha, hello. i just came across your vlog because their were hiv and AIDS tags for it as i was searching youtube. i didn’t hear you mention it specifically in your vlog that i watched, but i thought i heard you say something about a documentary. you did a great job with the vlog by the way. very natural with the camera and speaking. thats great. anyhow, there is a lot of information about hiv that we have not been told and you will find it here at my channel along with further links. this is going to possibly be overwhelming for you, so remember to breathe. i do the best i can to provide people with the truth in as many languages as i can. you are fortunate to have this information available to you at this time. just 15 years ago when i tested hiv positive i did not have a computer. i had to go to hospital libraries to do my research through medical journals and at that time i did not think to question the hiv test. about 6 years ago i finally got a computer and only 2 years ago did i get high speed internet and finally watch the videos with the information i needed to survive. now i understand that the hiv test is cross-reactive with many conditions including drug use and flu shots and only looks for 2 or 3 proteins for a positive result, 4 proteins are required in australia and canada. i stopped taking hiv drugs over 2 years ago when i found all this out and i have met many others who have done the same. i am very real and you can watch me in vlogs at my personal youtube channel ‘observationmode’ – link in friends section of this channel. let me know if there is anything i can do to help. Gregory – palm springs, california”
He also included a video link about this woman who filed a lawsuit for her false positive or something…which I didn’t watch, because I didn’t really care. (I’m sorry, but it’s true)
I didn’t really understand at first what this guy was getting at and read through the message rather quickly (since I was reading it on my itouch and was doing about a million other things as I always do). So, I just assumed that he thought that I was HIV+ and was offering me some guidance or something–which I don’t really want or need, especially not from random strangers on the internet.
So I answered with this message:
“Oh thank you very much, I really appreciate it.
However, the documentary I’m working on is actually about what it’s like to be an HIV- daughter of an AIDS survivor. My parents and younger sister were diagnosed about 12 years ago. My father passed away due to AIDS complications, but my mother and sister are very well now. My mother founded the organization SMART (Sisterhood Mobilized for AIDS/HIV Research and Treatment:: http://www.smartuniversity.org) 11 years ago, so for more than half my life I’ve been an AIDS advocate.
I’m sorry if there was any misunderstanding. My documentary is actually my senior project at my university. I haven’t quite organized my youtube page yet or figured out the best way to tell my story without getting people confused. My vlog is meant to document my thoughts and progress on the project and in life, but as I have just started there isn’t much to say just yet. Interviews with my mom and family members will be soon to follow.
Thank you again for reaching out.
Samantha”
It wasn’t until he sent me his next message that I really understood where this guy was coming from:
“My heart goes out to you. I can see that you are a shining star of light and love in this world. There is information here that will help your mother and sister. When they were diagnosed it was with the Western Blot hiv test and that test can cross-react with other conditions, so they may not have a deadly virus after all. I know how painful this is to realize, but it is based on the facts and the evidence. I also tested positive in 1993 and I would never joke about such serious things, especially when my own life was at stake. Again, My Prayers go out to you and your family, prayers for hope and wisdom and compassion. Gregory 760-416-9493 california”
Uhhhhhhhhhmmmmmmmm whaaaaat? Excuse me crazy, but if my fam wasn’t positive then why the hell have they been taking meds for the past DECADE or so? And no, I ain’t buying the whole “these drugs aren’t necessary” crap cus for the past two years we’ve been having a drug freak out with my sister. Yes. My family is positive and I really don’t appreciate people trying to play games and act like the problem isn’t there. I was so confused and annoyed I asked my mom what the hell this guy could be trying to tell me and she called him…I think the term she used was “Denialist.” Apparently out there, there’s a bunch of people who have tested positive and refuse to believe it. Some even go so far as to believe that HIV doesn’t exist.
WTF.
I’m sorry…cus it does seem like this guy means well…but this fucking pisses me off.
I can’t even put into words right now how I feel about this.
I’ll be making a video in response to this as soon as I get over my flabbergasted shock.
But then again…I don’t want more of them to attack me, so I’m considering making a video response that I don’t post to add to the documentary later….I dunno…I’m so stunned right now.